Hello!  You have likely here because you are interested in finding out about a particular disability or have a loved one who has recently been diagnosed.  You probably have more questions than answers.  You may be wondering if your emotions about the diagnosis are normal.  You may be feeling guilty and wondering what you did to make this happen.  

One of the goals of Well Worth the Journey is not only to provide information on a variety of disabilities but also to give you hope for the future.  We have been in the same place you are now.  Everyone's experience is a personal one but we all start with a concern that sometimes leads to a diagnosis.  We have probably had the same questions you are wondering about now.  We have all felt the emotions and wondered if they are okay to feel.  We have worked through the stages of grief and know that they are very important to go through to eventually come to acceptance.  Acceptance about the diagnosis and our children's modified path. 

Well Worth the Journey is an agency in its infancy.  We are working to make it a resource that will be beneficial to all families who are searching for answers and support.  Check back often for new information.  Please let us know how we can best serve your needs during this time in your life.

Well Worth the Journey is operated by parents who don't always have the answers but we usually know where to find the information. We will make sure no question goes unanswered. You do not need to go through this alone.  We are here to help when you are ready.  You can email Well Worth the Journey at